Seeing the fetal specalist

2 days later after i seen Dr Ortiz i got scheduled to see the fetal specalist (october 10,2011) Dr. Barsoom. Chris had taken the day off for us to go down to the doctor and find out what was going on just having hope that we would get news his legs could be fixed after he was born. We got to the office, got registered and sat there and waited to get called back filled with so many different emotions.. sad,lost,stressed,worried, and hopeful. Finally we got called in and the nurse did a full ultrasound and we got to see our baby on a 52 inch screen tv. She measured out ALL of the baby's bones and than we got to see a 3d picture of our baby. We liked that we were getting to see her/his beautiful face on the big screen but we will still worried/scared to hear what doc was going to give for us for information on his legs. After she had gotten done with measuring the baby she told us it would be just a few minutes for the doctor to come in. When he came in he started to tell us news that was SO unexpected.. that his leg bones were not only bent but his arms and legs were excessively short and that in a case like this he thinks that our baby has campomelic dysplasia which is a form of skeletal dysplasia. Chris and I just sat there at loss of words sad and heartbroken. As we sat there and listened the doctor told us that he was going to do an ambio santicas on me so that we could get exact results of what was wrong with our baby as to if it was a chromosonal deal and if it was skeletal dysplasia. He told us we could terminate the pregnancy or carry it to term and asked if we had any questions. Chris and I were still at loss of words and i was to sad to even talk and had been bawling for a while now but chris's mom started asking questions "well what are the chances of the baby living if they do carry it to full term?" "what is the quality of the childs life going to be" ect. and dr barsoom began answering telling us that if the baby lives outside of the womb and has Campomelic Dysplasia they only have a 5 percent chance of living and if the child does survive will have breathing trouble the rest of his/her life. I told him that we just needed to go home and would have answers for him after we had gotten the amnio results back. He had began doing the amnio to get a more exact diagnosis of what was going on with our child. I began wondering IF our baby was going to have physicical disabilities and if it was even right to bring he/she into this harsh world if he/she was going to have so many problems. After we were done with the amnio the doctor told us that he would give us a call in a few weeks with our results of the diagnosis and we could make our decisions. Chris and I than left the hospital and came home. I was clearly a mess by this time bawling my eyes out. We talked about it on the way home as to our decision but we just didnt have an answer to what we were going to do .. at first we thought about terminating the pregnancy before the 24 weeks IF we did get results that he had campomelic dysplasia because we didnt want our child suffering in this harsh world if he didnt get to have a good quality of life. I had so many mixed emotions at the time.. Felt guilty as to terminating the pregnancy and wondering if it wasnt right ect. We talked about how would we ever be able to raise a disabled child when we dont have the income for it ?? all kinds of different things but we just had to try not to stress and hope for the best while waiting for the results.