This is the story of our little guy Brayden Ryder. We found out he might be born with Campomelic dysplasia and may not survive for more than 5 minutes to a few hours. We are finishing out our last 3 months of pregnancy HOPING for a miracle but planning for brayden's passing.
Thursday, January 26, 2012
great doctor appointment :)
Everything went great today at the doctor. Brayden weighs 6 lbs 4 oz and is measuring perfectly other than the normal news his legs are still 5 weeks behind. I had asked the doctor today if she thought brayden has enough fluid on his brain to make him have a mental disability and she said no, its not even likely that he will need a shunt. He is practicing his breathing and swallowing normally. He also has good brain activity moves his fingers quite a bit ect. The surgery schedule-er is suppose to call me tomorrow or monday to set up my c-section for 39 weeks so we are trying for friday feb 17th if we can get that day.. which is only 3 weeks away :) mommy is excited to meet her little guy. We didnt get any good pictures today because he was being a little squirmer.. but i seen him yawn and his eyes were open again. I think hes ready to meet his mommy and daddy !! hehe. Hoping for a little miracle everyday, still preparing ourselves for the worst. He seems to be doing pretty good though !!
Thursday, January 12, 2012
Update on our little man
Short update on brayden:
GOOD NEWS! he was 3 pounds 7 ounces last time i went to the doctor 2 weeks ago and they were sort of concerned that he was slowing down on growth... but today he is 4 pounds 15 ounces.. hes becoming a little chunker :) Im excited about that. He opened his eyes today on camera which the nurse said that doesnt happen to often so she hurried and got a picture .. its not that great of one but its still amazing he did that for mom and dad!! We love seeing him on camera but I dont see dr barsoom anymore which means no more good pictures :( so this will be the last one i upload. As far as it goes with his length in his arms and legs they are still measuring behind 5 weeks and they can only get measurements of his thigh's because of the way he is sitting.. not to mention RIGHT ON MY BLADDER ( so i always have to pee every 20 minutes it seems like ). A little more good news... his chest cavity wasnt a big concern today as much as it was last time i seen dr barsoom .. its small but not to abnormal :) I dont see dr barsoom anymore because brayden is stable now i only see the main OBGYN every 2 weeks until the end... 7 weeks left... hes almost here.. we have mixed emotions about the whole deal considering his condition but still have little amounts of hope that we get a miracle. Also we seen him practicing his breathing today, which is good. so we got a little bit of the normal crappy news that we hope ends up turning out better than it is sounding now and then we also got some good news today.
the picture of him with his eyes open |
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