This is the story of our little guy Brayden Ryder. We found out he might be born with Campomelic dysplasia and may not survive for more than 5 minutes to a few hours. We are finishing out our last 3 months of pregnancy HOPING for a miracle but planning for brayden's passing.
Thursday, January 26, 2012
great doctor appointment :)
Everything went great today at the doctor. Brayden weighs 6 lbs 4 oz and is measuring perfectly other than the normal news his legs are still 5 weeks behind. I had asked the doctor today if she thought brayden has enough fluid on his brain to make him have a mental disability and she said no, its not even likely that he will need a shunt. He is practicing his breathing and swallowing normally. He also has good brain activity moves his fingers quite a bit ect. The surgery schedule-er is suppose to call me tomorrow or monday to set up my c-section for 39 weeks so we are trying for friday feb 17th if we can get that day.. which is only 3 weeks away :) mommy is excited to meet her little guy. We didnt get any good pictures today because he was being a little squirmer.. but i seen him yawn and his eyes were open again. I think hes ready to meet his mommy and daddy !! hehe. Hoping for a little miracle everyday, still preparing ourselves for the worst. He seems to be doing pretty good though !!
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AWESOME!!! Glad to hear you had a good appointment he seems right on track :)
ReplyDeleteThank you amanda :) .. yes i was excited about this appointment but we are still prepared and know the possibility of things.
ReplyDeleteHi my name is Aimee and I also was pregnant with a baby with campomelic dysplasia. I'm not sure if you still use your blog but if you do thank you for your story. I am so sorry for your loss.
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