Sunday, February 10, 2013

To our beautiful baby angel, Brayden

February 10- Will always be a special day for we got to become parents to the most beautiful baby boy who  changed our lives for the better.



It has been a year today since mommy & daddy entered the hospital to meet you. We were scared because we wanted you to be healthy but excited to meet you. At 8:31 AM you arrived and we got to see how beautiful you were. We had hope that you would be able to go home with us but after we spoke to the doctors it didn't look to promising. We realized that we only had a limited amount of time to spend with you, but we enjoyed every minute that we had in the short 3 days that you were with us. Giving you all the love that you deserved - holding your hand & telling you how much we loved you. We wish that we could be celebrating your first birthday a little differently by watching you blow out your candle, but everything happens for a reason and we know that you are safe in heaven watching over us. Happy 1st Birthday Brayden- mommy & daddy love you so much. We will never forget you.




Wednesday, April 11, 2012

Dear Brayden

There is never a day that goes by that i dont think about you, i miss you so much. I wish i could hold you, feed you, love on you and give you kisses, and take care of you but instead all i can do is think about you and know that your watching over your mom and dad. I have learned to accept it but sometimes its hard because im left wondering why this had to happen. Why you had to be sick and couldnt come home with us. I know this happened for a reason and the short 3 days of your life i enjoyed every minute that i spent with you.. those 3 days of your life mean so much to me and i will never forget them.  The night you took out your breathing tube we knew it was now up to you to decide if you belonged in god's home or with your family..  i enjoyed getting to hold you without having to be careful because of your tubes it didnt feel right with all of those tubes.. i know you werent comfortable and plus you looked SO beautiful without them. Mommy loves you so much little guy. Hopefully someday mommy and daddy will have you a little brother or sister we can tell them all about you and how much you changed our life. We will always remember you, you are never forgotten <3



Friday, March 30, 2012

genetics appointment

Chris and I had an appointment with dr olney (genetics councilor and shes great) about chris and i's future with having children. It actually went pretty good.. she doesn't recommend that Chris and i get testing done and that we have a 3 to 5 percent chance of having another child with campomelic dysplasia, SOOO eventually we are going to try again. I am still going to be scared during the pregnancy but if we get a healthy baby it will be worth it. I am thinking about keeping this blog going even though it was made specifically for Brayden.. we still miss him and he will never be forgotten so of course he will still be in the blog just after i started blogging i don't want to stop :) .  A day doesn't ever go by without me thinking about Brayden and what it would be like if he could of survived with campomelic dysplasia and what our lives would be like.. he was such a cute little booger. Mommy loves you little guy <3 . Anyway, that was it for the short update.
bye friends

Wednesday, February 15, 2012

RIP my baby boy [brayden]

Brayden was born on February 10th, 2010 and passed away on February 13th 2012. Experiencing something like this was the best/worst feeling ever. The best because we enjoyed brayden the 3 days that he was here and gave him all the love that he needed also he changed our lives so much in so many ways. We love him so much and he will never be forgetten. Hes watching over us now.. God wouldnt put us through anything that we couldn't handle. The worst part of it is, losing our little guy i didnt want to let him go... wish that things could of been different and we could of took him home but he had a different plan. I want to be able to love on him and kiss on him but know that it can't be that way.. i can still love him though.
Brayden mommy and daddy love you so much, there isn't a way to explain how much that we love you.

here are some pictures of brayden. hes the cutest baby ever.







Monday, February 6, 2012

Thursday, February 2, 2012

36 weeks 5 days

Doctor appointment today was okay, not really all that i wanted to hear though. Brayden hasnt gained any weight since last week but my doctor said that its normal sometimes they stay the same weight or even weigh a little less and that she will be more concerned next week if he hasnt gained any, which i hope that he does. His heart rate was a little bit lower today but as long as it doesnt get under 110 he should be fine, it was 122 bpm. He was moving alot though, didnt get to see his face or anything because hes to big in there and all scrunched up, im just ready to meet our little guy!! I have been so itchy lately and my doctor said sometimes pregnant people just get that way, so i got some benedryl hopefully that helps but had to get my blood drawn to make sure that it isnt something that can cause still birth, YIKES i hope not :( Im just all worried now. But on a good note my c-section is scheduled for Feb 17th at 8:45 in the morning, im excited/scared i hope everything goes better than what doctors tell us i have faith though.

Thursday, January 26, 2012

great doctor appointment :)

Everything went great today at the doctor. Brayden weighs 6 lbs 4 oz and is measuring perfectly other than the normal news his legs are still 5 weeks behind. I had asked the doctor today if she thought brayden has enough fluid on his brain to make him have a mental disability and she said no, its not even likely that he will need a shunt. He is practicing his breathing and swallowing normally. He also has good brain activity moves his fingers quite a bit ect. The surgery schedule-er is suppose to call me tomorrow or monday to set up my c-section for 39 weeks so we are trying for friday feb 17th if we can get that day.. which is only 3 weeks away :) mommy is excited to meet her little guy. We didnt get any good pictures today because he was being a little squirmer.. but i seen him yawn and his eyes were open again. I think hes ready to meet his mommy and daddy !! hehe. Hoping for a little miracle everyday, still preparing ourselves for the worst. He seems to be doing pretty good though !!